Consent for newborn screening: screening professionals' and parents’ views
نویسندگان
چکیده
منابع مشابه
Parental views on informed consent for expanded newborn screening.
BACKGROUND An increasing array of rare inherited conditions can be detected as part of the universal newborn screening programme. The introduction and evaluation of these service developments require consideration of the ethical issues involved and appropriate mechanisms for informing parents and gaining consent if required. Exploration of parental views is needed to inform the debate and speci...
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A short report is provided of an interview survey of 69 parents of boys suffering from Duchenne muscular dystrophy to determine their views of neonatal screening and their experiences at the time of diagnosis. Most of the parents favored screening in the neonatal period or in early infancy, and most of them expressed dissatisfaction with present delays, methods of disclosure, and subsequent su...
متن کاملParental consent for newborn screening in southern Taiwan.
OBJECTS With the advent of genetic technologies, many genetic/metabolic disorders can be detected asymptomatically but might be untreatable, and the benefits and risks of screening for them are not fully known. The purpose of this study is to explore current practice with regard to the parental consent process in newborn screening (NBS). DESIGN Staff in 23 obstetric clinics/hospitals that con...
متن کاملCLINICAL ETHICS Parental consent for newborn screening in southern Taiwan
Objects: With the advent of genetic technologies, many genetic/metabolic disorders can be detected asymptomatically but might be untreatable, and the benefits and risks of screening for them are not fully known. The purpose of this study is to explore current practice with regard to the parental consent process in newborn screening (NBS). Design: Staff in 23 obstetric clinics/hospitals that con...
متن کاملNewborn Screening for inherited metabolic disorders; news and views
Newborn screening is important for the early detection of many congenital genetic and metabolic disorders, aimed at the earliest possible recognition and management of affected newborns, to prevent the morbidity, mortality, and disabilities associated with an inherited metabolic disorder. This comprehensive system includes; testing, education, follow up, diagnosis, treatment, management, and ev...
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ژورنال
عنوان ژورنال: Public Health
سال: 2020
ISSN: 0033-3506
DOI: 10.1016/j.puhe.2019.08.009